An Indian boy, Mahendra Ahirwar, 13, previously suffered from a rare condition known as congenital myopathy, which caused very weak neck muscles, resulting in Mahendra’s head hanging at a 180 degree angle. His parents spent years taking him to one doctor after the other, but none were able to treat him. The young teenager has now undergone surgery by a former NHS surgeon, after Julie Jones, mother-of-two pooled £12,000 worth of funds for treatment. Dr Rajagopalan Krishnan, spinal surgeon in Apollo Hospital in Delhi, performed the surgery, changing the young boy’s life.
This story aired in a documentary on Channel 5 Extraordinary People series. The Indian family traveled thousands of miles on overnight train to India’s capital city. The surgery that Mahendra was preparing to undergo was highly risky and potentially fatal. His parents were extremely hurt by Mahendra’s everyday ailments and reported that they would rather their son die than continue to suffer each day. Menhendra’s condition prohibited him from being able to feed, bathe, or dress himself. Mahendra’s friends left him behind to go play since he was unable to join. After reading about his unfortunate situation, Julie Jones decided to help, setting up a crowdfunding page. “It was tragic. All I could think about was my own son and how I’d feel if he was in that situation,” she said.
Jones rose the necessary amount of funds for Mahendra’s surgery in 28 days. Three days afterwards, she was asked to fly into Delhi to meet Mahendra. Her nervousness of flying was outweighed by her eagerness to meet him, so Jones agreed. Film cameras discomforted her and made it difficult for her to sleep, but once Jones saw Mahendra, it was all worth it for her. She was only in Delhi for a few days, yet rapidly bonded with the young teenager.
“I wasn’t prepared for the love I’d feel for him. Meeting the boy whose photos I knew so well was both harrowing and uplifting. I was amazed to see him so thin. By the time I was due to leave, I was an emotional wreck and just didn’t want to go. Even though it was a short visit, I’d bonded with Mahendra and it broke my heart that I may never see him again,” she detailed.
Mahendra is doing much better. An anonymous donor gifted him with an electric wheelchair. He is now writing, watching television, and playing with his friends. He is required to wear a neck brace and see a doctor for routine check ups for the next sixth months, but Mahendra’s straight neck has made his voice louder and his future brighter. He may need additional surgery in the future, but that decision will be made after his neck has successful fusion.
Source: Mail Online
Photo: Mail Online
Thankfully he was able to have surgery to correct this health issue.