Quantcast

Brave Woman Wants To Raise Awareness Of Incredibly Painful "Suicide Disease"

Kayla Hansen woke up with a rash one morning, but assumed it was not serious. She tried to ignore it for a while, but when it didn’t go away, she went to see her doctor. It turned out she had a rare and extremely painful condition often referred to as the “suicide disease.”

Hansen recently shared her story on social media. She wants others to appreciate the struggle she has endured, and hopes to raise awareness about the condition.

She included pictures and details about her condition: “Picture on right is right before I got sick and picture on left is what my skin looks like now. My name is Kayla Hansen and a year and a half ago my life was changed forever. For those that know me you know that I love to work and have a ton of passion for my career of managing restaurants.”

Hansen explains when she received the diagnosis: “Dec. 27th 2015 I went in to work just like every other day not knowing my life as I knew it was soon to be over. I unfortunately got my hand slammed in between two doors and initially just thought my hand was broken. After 2 months of the swelling not going down, and my arm feeling like it was on fire I was given the diagnosis that I had complex regional pain syndrome also known as CRPS.”

Her post continued: “It is extremely rare and is literally rated the most painful thing in the world. More painful than childbirth, amputation, or any cancer there is. It is an autoimmune disease that affects every single part of your body including organs. Your body can no longer control temperature and it literally feels like you are being burned alive 24/7.”

It turns out she has a very severe case of CRPS: “Some people are lucky and the disease stays contained in just one limb. However I am very unlucky and mine has spread from my head to my toes in just over a year. I have seen over 50 doctors and they all say mine is the worst case they’ve ever seen. My condition is so bad that I’m literally being burned alive. Both of my arms from my shoulders down to my hands are covered in serious burns that start from the inside out. The burns are so serious that I have been hospitalized numerous times.”

Hansen also explains why shed is asking for donations: “I am starting this go fund me for numerous reasons…. the first being the costs of all my treatments. In a little over a year I’ve had over 40 surgeries and procedures. I am already so far in debt but still fighting and refuse to give up. I leave April 8th to travel to Arkansas to see a specialty doctor in my disease. There are only 4 doctors in the world that do what she does. I have to stay there for up to 14 weeks.. Between room and board and treatments it will costs thousands a week. There is no cure for this disease but I am hoping that I can at least get some relief.

This amazingly strong woman also wants to raise awareness about CRPS: “The other reason I am starting this account is I DESPERATELY WANT TO SPREAD THE WORD OF THIS AWFUL DISEASE. Although it is very rare we need to spread the word and make it so the whole world is informed of this condition.. It can happen to anyone at any time. It is brought on by a trauma or a surgery. It is known as the suicide disease because up to 40% of people with this disease kill themselves because the pain is so incredibly unbearable…”

Source: AWM
Photos: AWM

More News Stories

A new mother took a photo of her new baby girl in a way that got a huge reaction from onlookers, but not for the reasons you might think. The...

One mom borrowed a friend's make-up brush. Now, that mom might be in a wheelchair for life, all because of an infection.

Jo Gilchrist...

A restaurant owner that was having a bit of a rough patch of her own stuck to her no handouts policy when a homeless man wandered in looking for...

Mentally disabled people were being held prisoner in a Philadelphia basement in horrific conditions. The condition in which they were kept was so...

The United States is not acting out of fear in its efforts to destroy ISIS, a special assistant to President Trump declared this week.

The...

Latest News Stories

A devastated family is mourning the loss of their 4-month-old baby who was taken by a swift unexpected illness. The otherwise healthy boy had just...

A new mom named Mallory pumped some breast milk one night before heading to bed. Unfortunately, the next morning, her daughter was congested and...

On Friday, retired four-star Gen. Ray Odierno told MSNBC's "Morning Joe" program that the rise of ISIS may have been "avoidable" if the United...

After a Maryland University graduation bash got out of hand, police showed up to get things under control. Chaos ensued, and police were accused...

Donald Trump declared Saturday that Sen. John McCain, who was held prisoner in North Vietnam, is not a war hero.

According to The Guardian...

A little boy in Nairobi, Kenya living on the streets approached a car to beg for money. When he talked to the driver for a few minutes, he was...

It is no secret that California and parts of the Western US are facing record droughts which are having catastrophic impacts on the availability...

Australia’s high percentage of Muslim immigrants has caused tense situations in residential areas, shopping centers and now, education facilities...

Sen. Ted Cruz argued recently that gay and lesbian Americans are discriminating against Christians, according to Opposing Views.

The...

A deal in the US Senate that would restore emergency unemployment insurance faces a serious foe in House Speaker John Boehner, who says one...